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Dobrogowska-Schlebusch Ewa (Uniwersytet Jagielloński Collegium Medicum, Kraków), Niedźwiedzka Barbara (Uniwersytet Jagielloński Collegium Medicum, Kraków)
Systematyczny przegląd metod i narzędzi badania zdrowotnych potrzeb informacyjnych rodzinnych opiekunów osób chorych i niepełnosprawnych
Systematic Review of Methods and Tools for Assessing Family Caregivers' Health Information Needs
Zdrowie Publiczne i Zarządzanie, 2015, t. 13, nr 3, s. 283-294, rys., bibliogr. 92 poz.
Słowa kluczowe
Osoby niepełnosprawne, Potrzeby informacyjne, Metodologia badań
Disabled people, Information needs, Research methodology
W celu znalezienia optymalnej metody lub narzędzia badania potrzeb informacyjnych rodzinnych opiekunów osób chorych lub niepełnosprawnych, związanych z koniecznością sprawowania opieki nad bliskim (dotyczących zdrowia lub leczenia podopiecznego), dokonany został przegląd badań potrzeb informacyjnych wyżej wymienionych grup, które zostały opublikowane w ciągu ostatnich pięciu lat. W celu zwiększenia prawdopodobieństwa uwzględnienia w nim wszystkich najistotniejszych badań potrzeb informacyjnych opiekunów rodzinnych wykorzystano w tym badaniu elementy metody przeglądu systematycznego.(fragment tekstu)

Introduction. Assessment of the information needs of patients and their family caregivers is considered as the foundation from which to develop patient-centred services. The aim of this study is to conduct a systematic review of the studies published in a last 5 years on family caregivers' health information needs in order to find out if there is any standard method to perform information needs assessment in the area of healthcare. Methods. Search of the literature from the last five years was conducted using Medline, EMBASE, Scopus, Academic Search Premier, ERIC, Health Source: Nursing/Academic Edition, LISTA and Polska Bibliografia Lekarska yielding 2869 articles. Of these, 79 studies were included in the review. Results. Most included studies (33 + 4) used a qualitative or mixed design; there were no observational or experimental research included into review. In three studies existing theory was tested and only one study was of methodological character. Only four included studies used a longitudinal design. The sample population in qualitative studies usually is not representative, what does not allow generalization. Conclusion. Systematic review of research into family caregivers' health information needs confirms that within the field of health information needs research there is neither prevailing method to assess them, nor established theoretical background (concepts, standard terminology, dominating models). (original abstract)
Pełny tekst
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